Whether she’s recruiting allies in the fight against ALS/MND or urging friends to let loose and unwind, Desi does it with warmth and wit. As hard as she works, she also loves reading novels, watching reality TV, and dropping gifts for friends in digital shopping baskets. Prior to her battle with Motor Neuron Disease (MND)/Amyotrophic Lateral Sclerosis (ALS) she worked at a luxury hotel, basked in her city’s nightlife scene, and travelled the world with her husband Paul. Today, she balances being a mom to her daughter Birdie with heading partnerships at Her ALS Story, an organisation of young women fighting ALS/MND and the stereotypes that come with it. Despite the difficulties of living with the condition, Desi maintains a packed schedule. She uses a speech-generating device called TD I-Series for both everyday conversations and virtual communication.